Live Virtual Group Session: 7pm EST April 1st 2020

Thank you to everyone who joined us for this session!

Forty-nine people from around the world (Bahrain, United Kingdom, Qatar, other places typed into the chat?) gathered for an hour in Narrative Medicine’s Zoom Room to read the prologue to Planet of the Blind, Stephen Kuusito’s memoir of living with retinopathy, the result of his being placed in an over- oxygenated incubator soon after his premature birth.   

In the prologue (text posted below), readers meet Kuusito  with his dog Corky navigating Grand Central Station “a temple for Hermes…with no idea …how to find our train.” One Zoom participant responded to the renderings of a man, who is able to see “colors and shapes that seem windblown” and guides the sighted with words and images of “hemlock darknesses and sudden pools of rose-colored electric light.” A close reader drew our attention to a single word in the sentence, “There is something about us…” and considered the possible use of “aboutto reference subjects (in this case a man and his dog) or to point to what surrounds or is “about” them. Another participant noticed the many images, which the narrator conjured from nature: not only animals and hemlocks but also a gibbous moon as he walks through the vaulted railway station. One person liked that he invoked his dog’s name four times. Another mentioned the narrator’s reference to himself and Corky as two slow moving sea lions. She noted that those creatures are awkward on land but, in their element, are graceful and strong. For one reader this text evoked another text. She drew a parallel between Virgil guiding Dante and the railway employee offering to guide the memoirist.

On Zoom we had two senses: vision and hearing, yet, guided in words through the scene, we were able to feel “a breeze from Jerusalem” and a gentle touch when Kuusito decides to trust a stranger, take his elbow, and welcome readers “to the planet of the blind.”

After twenty minutes of discussion, we wrote to the prompt: “Write about your planet.”

Before inviting people to read, the facilitators asked people to respond to each other’s work as they had to the published work, not interviewing the writer or asking more of a piece than what it can furnish in four minutes of writing.

Three people read aloud and a dozen responded to their renderings of “our”planet (as one person wrote) with children playing and flowers blooming; a grocery store aisle where the narrator is afraid of the virus and afraid to talk to another shopper; and a backyard with deer and giant birds (related to dinosaurs), a planet preserved for wildlife.  

Participants are warmly encouraged to share what you wrote below, to keep the conversation going here, bearing in mind that the blog of course is a public space where confidentiality is not assured.

Please join us for our next session: Friday April 3rd at 6pm EST, with more times to be announced shortly.

As before, due to the wonderful turnout for these sessions, we encourage you to join as promptly as possible: After a ten minute grace period, we will be closing the Zoom session to preserve the integrity of the session for those joined. If you try to join past that time and are unable, we encourage you to join the next session! More times and opportunities will be announced soon.

We look forward to seeing you again soon!

I’ve entered Grand Central Station with guide dog Corky, my yellow Labrador. We stand uncertain, man   and dog collecting our wits while thousands of five o’clock commuters jostle around us. Beside them,   Corky and I are in slow motion, like two sea lions. We’ve suddenly found ourselves in the ocean, and   here in this railway terminal, where pickpockets and knife artists roam the crowds, we’re moving in a   different tempo. There is something about us, the perfect poise of the dog, the uprightness of the man, I   don’t know, a spirit maybe, fresh as the gibbous moon, the moon we’ve waited for, the one with the new  light.

So this is our railway station, a temple for Hermes. We wash through the immense vault with   no idea about how to find our train or the information kiosk. And just now it doesn’t matter. None of the   turmoil or anxiety of being lost will reach us because moving is holy, the very motion is a breeze from Jerusalem.

 This blindness of mine still allows me to see colors and shapes that seem windblown; the great   terminal is supremely lovely in its swaying hemlock darknesses and sudden pools of rose-colored electric   light. We don’t know where we are, and though the world is dangerous, it’s also haunting in its beauty.   Even to a lost man with a speck of something like seeing, this minute here, just standing, taking in the air   as a living circus, this is what tears of joy are for.

 A railway employee has offered to guide me to my train. I hold his elbow gently, Corky heeling   beside us, and we descend through the tunnels under the building. I’ve decided to trust a stranger.

 Welcome to the planet of the blind.      

Kuusito, Stephen. Planet of the Blind (1998) New York: Dial Press.


Narrative Medicine Book Club: April 1st, 2020

This idea of illness as equalizer (though technically in this quote they are talking about the plague of rats and not yet of humans) really resonates in today’s pages. There’s another moment in these pages where this comes up — when Tarrou is describing the two tram conductors talking about someone who has died: “‘Even so, he seemed like anyone else,'” says one, and the other answers “‘No, he had a weak chest.'” We see people doing this so much these days, too, trying to find the reason why one person succumbs where another doesn’t, as if there is a map to follow, a clear way to reliably separate the population into categories. What happens if we are are all “like everybody?”


I’m also very interested in the way the narrator is taking shape … he reliably refers to “our” town, but then never uses the first person, referring instead repeatedly to “the narrator” in the third person. Also interesting how the narrator is beginning to bring in other “sources,” while maintaining a main narrative voice that nonetheless seems to know things that he probably wouldn’t, unless the narrator is actually Rieux himself? (I’m sure many of you already know the answer here but please don’t reveal it yet!) 


FOR TOMORROW: Read the next 7 or so pages (actually tomorrow it’s more like 8!), up to “The main thing was to do one’s job well.” 

ALSO ANNOUNCING OUR FIRST ZOOM MEETING TIME! Sunday, April 5th, at 2pm Eastern via Narrative Medicine Zoom.


Live Virtual Group Session: 7pm EST March 31st 2020

It was wonderful to meet with last night’s group for our second live session, coming together from around the globe –from Brooklyn to San Francisco, Canada to Qatar. We were profoundly uplifted to see so many people share in this experience. The responses, spoken and written, were unforgettable.

The poem we read together was “Wait” by Galway Kinnell, posted below.  It helped us think about how very strange time has become under the conditions of pandemic, and about trust, and where it can be nurtured, “Distrust everything, if you have to./But trust the hours.”   Recognizing how weary many of us feel at this moment, the poem also opened the topic of fatigue, “You’re tired. But everyone’s tired./But no one is tired enough.”  And very powerful recollections were stirred by the imagery of “second-hand gloves,” “their memories are what give them the need for other hands.”

Our prompt was: “Write about a recent time when you trusted the hours.”  The writing produced and read aloud was rich with imagery and emotion, and our participants listened attentively and showed great appreciation and empathy for one another.  One particular piece drew our attention to the elements of time and hope in our processing of loss.

Participants are warmly encouraged to share what you wrote below, to keep the conversation going, bearing in mind that the blog of course is a public space where confidentiality is not assured.

Please join us for our next session: Wednesday April 1st at 7pm EST, with more times to be announced shortly.

As before, due to the wonderful turnout for these sessions, we encourage you to join as promptly as possible: After a ten minute grace period, we will be closing the Zoom session to preserve the integrity of the session for those joined. If you try to join past that time and are unable, we encourage you to join the next session! More times and opportunities will be announced soon.

We look forward to seeing you again soon!

Wait
Copyright © 1980 by Galway Kinnell. From Mortal Acts, Mortal Words (Mariner Books, 1980).

Wait, for now.
Distrust everything, if you have to.
But trust the hours.  Haven’t they
carried you everywhere, up to now?
Personal events will become interesting again.
Hair will become interesting.
Pain will become interesting.
Buds that open out of season will become lovely again.
Second-hand gloves will become lovely again,
their memories are what give them
the need for other hands.  And the desolation
of lovers is the same: the enormous emptiness
carved out of such tiny beings as we are
asks to be filled; the need
for the new love is faithfulness to the old.

Wait.
Don’t go too early.
You’re tired.  But everyone’s tired.
But no one is tired enough.
Only wait a while and listen.
Music of hair,
Music of pain,
music of looms weaving all our loves again.
Be there to hear it, it will be the only time,
most of all to hear,
the flute of your whole existence,
rehearsed by the sorrows, play itself into total exhaustion.